TOPIC: Chronic Illness: Information and Coping

The following represents a sample of information to get you started and is not meant to be exhaustive.
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Center Developed Documents, Resources, and Tools

Continuing Education Module

• Mental Health in Schools: New Roles for School Nurses (Continuing Education Module)

Newsletter

• School Linked Services and Beyond (Newsletter, Spring, '96)

QuickFind

• Physical and Somatic Complaints

Resource Aid Packet

• Screening/Assessing Students: Indicators and Tools

Technical Aid Packet

• School-Based Client Consultation, Referral, and Management of Care (Technical Aid Packet)

Technical Assistance Sampler

• School Based Health Centers

• Adolescent Chronic Illness: A Qualitative Study of Psychosocial Adjustment
• Back to School: A Resource for Teachers to Help Children with Cancer in School
• The Child with a Long-Term Illness
• Children and Youth with Special Health Care Needs Knowledge Path
• Children and Chronic Illness
• Children with A Chronic Illness: The Interface of Medicine and Mental Health
• Children with Chronic Conditions
• Chronic Condition and School
• Chronic Illness in Adolescence
• How Parents Can Help Their Child Cope with A Chronic Illness
• In the Shadow of Illness: Parents and Siblings of the Chronically Ill Child
• Medical Problems: KidsHealth
• Placement of School Children With Acquired Immune Deficiency Syndrome (AIDS)
• Prevalence and Impact of Chronic Illness Among Adolescents
• Psychological Complications of Chronic Illness
• Psychosocial Risks of Chronic Health Conditions in Childhood and Adolescence
• School Disruptions (Related to Chronic Illness)
• Students With Chronic Illness: Guidance for Families, Schools and Students
• Supporting Students with Asthma
• Young People with Cancer: A Handbook for Parents

Related Agencies and Websites

• Chronic Disease Prevention and Health Promotion
• Cystic Fibrosis Foundation
• Help for Children with Chronic, Life-Threatening, Illnesses and Disabilities
• National Association of School Nurses
• The National Children's Cancer Society
• National Dissemination Center for Children with Disabilities
• UMass-Simmons School Health Institute

• Chronic Illness in Children And Adolescents. Brown, R.T., Daly, B.P., & Rickel, A.U. (2007). Hogrefe & Huber Pub.
• Chronic Illness in Children: An Evidence-Based Approach. By Hayman, L. L., Mahon, M. M., & Turner, J. R. (2002). Springer Publishing Company.
• Cognitive Aspects of Chronic Illness in Children. Brown, R.T. , Ed. (1999). New York, NY: The Guilford Press.
• Families coping with childhood chronic illness: A research review. By Cohen, M. (1999). In: Families, Systems & Health, 17 (2): 149-16.
• Life Lessons from Children with Cancer and Chronic Illnesses. By  Morgan, Alma M. (2010). Dietz Press.
• Living With Childhood Cancer: A Practical Guide to Help Families Cope. By  Woznick, L. & Goodheart, C. (2002). APA Books.
• Progress in diagnosis and understanding chronic pain syndromes in children and adolescents.  By Cassidy, JT (1998). In: Adolescent Medicine,  9(1): 101-14.
• Quality-of-life measures in chronic diseases of childhood. By Eiser, C. & Morse, R. (2001). In: Health Technology Assessment, 5(4): 1-157.
• Surviving chronic physical illness: psychosocial outcome in adult life. By Gledhill, J; Rangel, L; & Garralda, E. (2000). In: Archives of Disease in Childhood, 83(2): 104-10.
• Stress, coping, and adjustment in children with a chronic disease: A review of the literature.  By Boekaerts, M. & Roeder, I. (1999).  In: Disability & Rehabilitation: An International Multidisciplinary Journal, 21 (7): 311-337.

We hope these resources met your needs. If not, feel free to contact us for further assistance.For additional resources related to this topic, use our search page to find people, organizations, websites and documents.  You may also go to our technical assistance page for more specific technical assistance requests.

If our website has been helpful, we are pleased and encourage you to use our site or contact our Center in the future.  At the same time, you can do your own technical assistance with "The fine Art of Fishing" which we have developed as an aid for do-it-yourself technical assistance.